Article

Participatory design of an orientation aid for amnesics

Authors:

Brian RichardsAuthors Info & Claims

CHI '05: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems

Pages 511 - 520

https://doi.org/10.1145/1054972.1055043

Published: 02 April 2005 Publication History

Abstract

We present the participatory design and evaluation of an orientation aid for individuals who have anterograde amnesia. Our design team included six amnesics who have extreme difficulty storing new memories. We describe the methods we used to enable the participation of individuals with such severe cognitive impairments. Through this process, we have conceived, designed, and developed the OrientingTool, a software application for Personal Digital Assistants that can be used by amnesics to orient themselves when feeling lost or disoriented. Two complementary studies were conducted to evaluate the effectiveness of this tool in ecologically valid contexts. Our findings suggest that the OrientingTool can improve an amnesic's independence and confidence in managing situations when disoriented, and that participatory design may be productively used with participants who have significant cognitive disabilities.

References

[1]

Baycrest Directory of Programs and Services: Memory-Link. Last accessed on September 10th, 2004. http://www.baycrest.org/directory/directory_memory_link_se12.asp.

[2]

Blasch, B., Wiener, W., Welsh, R. (1997). Foundations of Orientation and Mobility. 2nd edition. American Foundation of the Blind.

[3]

Bødker, S., Ehn, P., Kammersgaard, J., Kyng, M., & Sund-blad, Y. (1987). A UTOPIAN experience, Computers and Democracy - a Scandinavian Challenge, P. Ehn, G. Bjerknes, and M. Kyng, (Eds). 251--278.

[4]

Busboom, M., & May, M. (1999). Mobile navigation for the blind, Proceedings of ICWC 1999.

[5]

Carmien, S., & Gorman, A. (2003). Creating Distributed Support Systems to Enhance the Quality of Life for People with Cognitive Disabilities, Proceedings of UbiHealth 2003.

[6]

Craik, F., Anderson, N., Kerr, S., & Li, K. (1995). Memory Changes in Normal Ageing, Handbook of Memory Disorders, B. Wilson A. Baddeley, & F. Watts, (Eds). John Wiley & Sons. 211--241.

[7]

Curran, T., & Schacter, D. (2000). Cognitive Neuropsychological Issues, Patient-Based Approaches to Cognitive Neuroscience, M. Farah & T. Feinberg, (Eds). The MIT Press. 291--299.

[8]

Fluharty, G.P., D. (1993). Methods of increasing client acceptance of a memory book. Brain Injury, 7(1): 85--88.

[9]

Greenbaum, J., & Kyng, M. (1991). Design at work: cooperative design of computer systems. Mahwah, NJ.: Lawrence Erlbaum Associates, Inc.

Digital Library

[10]

Hersh, N., & Treadgold, L. (1994). NeuroPage: The rehabilitation of memory dysfunction by prosthetic memory and cueing. Neurorehabilitation, 4: 187--197.

[11]

Kapur, N., Glisky, E., Wilson, B. (2004). Technological memory aids for people with memory deficits. Neuropsychological Rehabilitation, 14(1/2): 41--60.

[12]

Keates, S., Clarkson, P.J., Harrison, L., & Robinson, P. (2000). Towards a practical inclusive design approach, Proceedings of CUU 2000. 45--52.

Digital Library

[13]

Kime, S.K., Lamb, D.G., Wilson, B.A. (1996). Use of a comprehensive programme of external cueing to enhance procedural memory in a patient with dense amnesia. Brain Injury, 10(1): 17--25.

[14]

Kray, C., Elting, C., Laakso, K., & Coors, V. (2003). Presenting route instructions on mobile devices, Proceedings of IUI 2003. 117--124.

Digital Library

[15]

LoPresti, E.F., Mihailidis, A., & Kirsch, N. (2004). Assistive technology for cognitive rehabilitation: State of the art. Neuropsychological Rehabilitation, 14(1/2): 5--39.

[16]

Moran, T.P., & Carroll, J. (1996). Design Rationale: Concepts, Techniques, and Use: Lawrence Erlbaum Associates.

Digital Library

[17]

Richards, B., Leach, L., & Proulx, G. (1990). Memory rehabilitation in a patient with bilateral dorsomedial thalamic infarcts. Journal of Clinical and Experimental Neuropsychology, 12: 395.

[18]

Ross, D.A., & Blasch, B.B. (2002). Development of a Wearable Computer Orientation System. Personal and Ubiquitous Computing, 6(1): 49--63.

Digital Library

[19]

Schacter, L. (1996). Implicit memory: A new frontier for cognitive neuroscience, The cognitive neurosciences, M.S. Gazzaniga, (Eds). MIT Press. 815--824.

[20]

Sohlberg, M.M., & Mateer, C.A. (2001). Cognitive Rehabilitation: An integrative neuropsychological approach: The Guilford Press.

[21]

Squire, L.R., & Frambach, M. (1990). Cognitive skill learning in amnesia. Psychobiology, 18: 109--117.

[22]

Wilson, B.A., & Evans, J.J. (1996). Error-free learning in the rehabilitation of people with memory impairments. Journal of Head Trauma Rehabilitation, 11: 54--64.

[23]

Wilson, B.A.(1999).Case Studies in Neuropsychological Rehabilitation: Oxford University Press.

[24]

Wilson, B.A., Emslie, H.C., Quirk, K., & Evans, J.J. (2001). Reducing everyday memory and planning problems by means of a paging system. Journal of Neurology, Neurosurgery, & Psychiatry, 70(4): 477--482.

[25]

Wu, M., Richards, B., & Baecker, R. (2004). Participatory Design with Individuals who have Amnesia, Proceedings of PDC 2004. 214--223.

Digital Library

[26]

Wu, M. (2004). The Participatory Design of an Orientation Aid for People with Amnesia. MSc thesis, Dept of Computer Science, University of Toronto. http://www.dgp.toronto.edu/~mchi/download/AmnesiaThesisFinal.pdf

Cited By

Çarçani KBratteteig THolone HHerstad J(2023)EquiP: A Method to Co-Design for CooperationComputer Supported Cooperative Work (CSCW)10.1007/s10606-023-09463-w32:3(385-438)Online publication date: 21-Mar-2023
https://doi.org/10.1007/s10606-023-09463-w
Hamidi FOwuor PHynie MBaljko M(2022)"Knowledge Comes Through Participation": Understanding Disability through the Lens of DIY Assistive Technology in Western KenyaProceedings of the ACM on Human-Computer Interaction10.1145/35129196:CSCW1(1-25)Online publication date: 7-Apr-2022
https://dl.acm.org/doi/10.1145/3512919
McDonald NMentis HKitamura YQuigley AIsbister KIgarashi TBjørn PDrucker S(2021)Building for ‘We’: Safety Settings for Couples with Memory ConcernsProceedings of the 2021 CHI Conference on Human Factors in Computing Systems10.1145/3411764.3445071(1-11)Online publication date: 6-May-2021
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Index Terms

Participatory design of an orientation aid for amnesics
1. Social and professional topics
  1. Professional topics
    1. Computing profession
      1. Assistive technologies
  2. User characteristics
    1. People with disabilities

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Published In

cover image ACM Conferences

CHI '05: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems

April 2005

928 pages

ISBN:1581139985

DOI:10.1145/1054972

Conference Chairs:
Wendy Kellogg
IBM T. J. Watson Research Center
,
Shumin Zhai
IBM Almaden Research Center
,
General Chair:
Gerrit van der Veer
Vrije Universiteit, The Netherlands
,
Program Chair:
Carolyn Gale
Stanford University, USA

Copyright © 2005 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

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Published: 02 April 2005

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April 2 - 7, 2005

Oregon, Portland, USA

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CHI '05 Paper Acceptance Rate 93 of 372 submissions, 25%;

Overall Acceptance Rate 6,199 of 26,314 submissions, 24%

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Cited By

Çarçani KBratteteig THolone HHerstad J(2023)EquiP: A Method to Co-Design for CooperationComputer Supported Cooperative Work (CSCW)10.1007/s10606-023-09463-w32:3(385-438)Online publication date: 21-Mar-2023
https://doi.org/10.1007/s10606-023-09463-w
Hamidi FOwuor PHynie MBaljko M(2022)"Knowledge Comes Through Participation": Understanding Disability through the Lens of DIY Assistive Technology in Western KenyaProceedings of the ACM on Human-Computer Interaction10.1145/35129196:CSCW1(1-25)Online publication date: 7-Apr-2022
https://dl.acm.org/doi/10.1145/3512919
McDonald NMentis HKitamura YQuigley AIsbister KIgarashi TBjørn PDrucker S(2021)Building for ‘We’: Safety Settings for Couples with Memory ConcernsProceedings of the 2021 CHI Conference on Human Factors in Computing Systems10.1145/3411764.3445071(1-11)Online publication date: 6-May-2021
https://dl.acm.org/doi/10.1145/3411764.3445071
Seale JCarrizosa HRix JSheehy KHayhoe S(2019)In Search of a Decision-Making Framework for Involving Users Who Have Learning Disabilities or Sensory Impairments in the Process of Designing Future TechnologiesProceedings of the Future Technologies Conference (FTC) 201910.1007/978-3-030-32520-6_61(844-861)Online publication date: 13-Oct-2019
https://doi.org/10.1007/978-3-030-32520-6_61
Hamidi FMbullo POnyango DHynie MMcGrath SBaljko MBouhlel MJere N(2018)Participatory design of DIY digital assistive technology in Western KenyaProceedings of the Second African Conference for Human Computer Interaction: Thriving Communities10.1145/3283458.3283478(1-11)Online publication date: 3-Dec-2018
https://dl.acm.org/doi/10.1145/3283458.3283478
Lazar AFeuston JEdasis CPiper AMandryk RHancock MPerry MCox A(2018)Making as ExpressionProceedings of the 2018 CHI Conference on Human Factors in Computing Systems10.1145/3173574.3173925(1-16)Online publication date: 21-Apr-2018
https://dl.acm.org/doi/10.1145/3173574.3173925
Haworth BUsman MBaljko MHamidi F(2016)The Use of Working Prototypes for Participatory Design with People with DisabilitiesComputers Helping People with Special Needs10.1007/978-3-319-41264-1_19(134-141)Online publication date: 6-Jul-2016
https://doi.org/10.1007/978-3-319-41264-1_19
Williams MBuehler EHurst AKane SCarriço LMirri SGuerreiro TThiessen P(2015)What not to wearableProceedings of the 12th International Web for All Conference10.1145/2745555.2746664(1-4)Online publication date: 18-May-2015
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Hendriks NSlegers KDuysburgh P(2015)Codesign with people living with cognitive or sensory impairments: a case for method stories and uniquenessCoDesign10.1080/15710882.2015.102031611:1(70-82)Online publication date: 11-Mar-2015
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Kim HSmith-Jackson TKleiner B(2014)Accessible haptic user interface design approach for users with visual impairmentsUniversal Access in the Information Society10.1007/s10209-013-0325-013:4(415-437)Online publication date: 1-Nov-2014
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