Computer usage by young individuals with down syndrome: an exploratory study

ABSTRACT

In this paper, we discuss the results of an online survey that investigates how children and young adults with Down syndrome use computers and computer-related devices. The survey responses cover 561 individuals with Down syndrome between the age of four to 21. The survey results suggest that the majority of the children and young adults with Down syndrome can use the mouse to interact with computers, which requires spatial, cognitive, and fine motor skills that were previously believed to be quite challenging for individuals with Down syndrome. The results show great difficulty in text entry using keyboards. Young individuals with Down syndrome are using a variety of computer applications and computer related devices, and computers and computer-related devices play important roles in the life of individuals with Down syndrome. There appears to be great potential in computer-related education and training to broaden existing career opportunities for individuals with Down syndrome, and there needs to be further research on this topic.

References

1. Abbeduto, L., Pavetto, M., Kesin, E., Weissman, M., Karadottir, S.,O'Brien, A. & Cawthon, S. (2001) The linguistic and cognitive profile of Down syndrome: Evidence from a comparison with fragile X syndrome. Down Syndrome Research and Practice,7, 9--15.
2. Alm, N., Dye, R., Astell, A., Ellis, M., Gowans, G., and Campbell, J. (2007). Making software accessible for users with dementia. In J. Lazar (ed.) Universal Usability: Designing Computer Interfaces for Diverse Users. Chichester, UK: John Wiley & Sons, 299--316.
3. Bruni, M. (2006). Fine motor skills for children with Down syndrome(second edition). Bethesda, MD: Woodbine House.
4. Capone,G., Goyal, P., Ares, W. & Lannigan, E. (2006). Neurobehavioral disorders in children, adolescents, and young adults with Down syndrome. American Journal of Medical Genetics. Part C, Seminars in Medical Genetics, 142C, 158--172.
5. Centers for Disease Control and Prevention (2006). Improved national prevalence estimates for 18 selected major birth defects--United States, 1999--2001. Morbidity and Mortality Weekly Report, 54, 1301--1305.
6. Chapman, R., Schwartz, S. & Bird, E.R. (1991). Language skills of children and adolescents with Down syndrome I: Comprehension. Journal of Speech and Hearing Research, 1106--1120.
7. Chapman, R., Seung, J., Schwartz, S. & Bird, E.R. (1998). Language skills of children and adolescents with Down syndrome II: Production deficits. Journal of Speech, Language and Hearing Research, 41, 861--873.
8. Cohone, T., Baecker, R., Marziali, E., and Mindy, S. (2007). Memories of a life: A design case study for Alzheimer's Disease. In J. Lazar (ed.) Universal Usability: Designing Computer Interfaces for Diverse Users. Chichester, UK: John Wiley & Sons, 357--387.
9. Dawe, M. (2006). Desperately seeking simplicity: how young adults with cognitive disabilities and their families adopt assistive technologies. Proceedings of the ACM Conference on Human Factors in Computing Systems (CHI), 1143--1152.
10. Fowler, A. (1995). Linguistic variability in persons with Down syndrome. In Nadel, L. & Rosenthal, D., Down Syndrome: Living and Learning in the Community, New York, NY: Wiley--Liss, 121--131.
11. Hopmann, M. R. & Wilen, E. (1993). Visual and Auditory Processing in Children with Down Syndrome: Individual Differences. Presented at the Society for Research in Child Development, New Orleans, March 1993.
12. Jarrold, C. & Baddeley, A.D. (2002). Verbal short-term memory in Down syndrome. Journal of Speech, Language and Hearing Research, 45, 531--544.
13. Kirijian, A., and Myers, M. (2007). Web fun central: online learning tools for individuals with down syndrome. In J. Lazar (ed.) Universal Usability: Designing Computer Interfaces for Diverse Users. Chichester, UK: John Wiley & Sons, 195--230.
14. Kumin, L. (2003). Early Comunication Skills in Children with Down Syndrome: A Guide for Parents and Professionals. Bethesda, MD: Woodbine House.
15. Kumin, L. (2006). Differential diagnosis and treatment of speech sound production problems in individuals with Down syndrome. Down Syndrome Quarterly, 8, 7--18.
16. Kumin, L. (2008). Language intervention to encourage complex use: A clinical perspective. in Roberts, J.E., Chapman, R.S. & Warren, S.F. Speech and language development & intervention in Down syndrome & Fragile X syndrome. Baltimore: Paul H. Brookes Publishing (193--218).
17. Kumin, L. & Adams, J. (2000). Developmental Apraxia of speech and intelligibility in children with Down syndrome. Down Syndrome Quarterly, 5, 1--6.
18. Lazar, J. (2007). Introduction to Universal Usability. In Universal Usability: Designing Computer Interfaces for Diverse User Populations (pp. 1--12). Chichester, UK: John Wiley & Sons.
19. Lazar, J., and Preece, J. (1999). Designing and Implementing Web--Based Surveys. Journal of Computer Information Systems. (4) 63--67.
20. Lewis, C. (2005). HCI for People with Cognitive Disabilities. ACM SIGACCESS Accessibility and Computing, 83, 12--18.
21. Lloyd, J., Moni, K., and Jobling, A. (2006). Breaking the hype cycle: using the computer effectively with learners with intellectual disabilities. Down Syndrome Research and Practice, 9(3), 68--74.
22. Marcell, M., and Falls, A. (2001). Online data collection with special populations over the world wide web. Down Syndrome Research and Practice, 7(3), 106--123.
23. Moffatt, K., McGrenere, J., Purves, B., & Klawe, M. (2004). The participatory design of a sound and image enhanced daily planner for people with aphasia. The Proceedings of ACM CHI 2004 Conference on Human Factors in Computing Systems, 407--414.
24. Roizen, N. J., Mets, M. B. & Blondis, T. A. (1994) Ophthalmic disorders in children with Down syndrome. Developmental Medicine and Child Neurology, 36, 594--600.
25. Seale, J. (2002). The use of the personal home page by adults with down's syndrome as a tool for managing identity and friendship. British Journal of Learning Disabilities, 30, 142--148.
26. Seale, J. (2001). The same but different: the use of the personal home page by adults with down syndrome as a tool for self--presentation. British Journal of Educational Technology, 32(3), 343--352.
27. Shott, S. R. (2000). Down syndrome: Common pediatric ear, nose, and throat problems. Down Syndrome Quarterly, 5, 1--6.
28. Slatin, J., & Rush, S. (2003). Maximum Accessibility. New York: Addison-Wesley.
29. Sutcliffe, A., Fickas, S., Sohlberg, M., Ehlhardt, L. (2003). Investigating the usability of assistive user interfaces. Interacting with Computers, 15, 577--602.
30. Tartaro, A. (2007). Authorable virtual peers for children with autism. Paper presented at the Proceedings of ACM CHI 2007 Conference on Human Factors in Computing Systems, 1677--1680.
31. U. S. government. (1998) Section 508. Electronic and Infomration Technology, 1998 Admendment to Section 508 of the Rehabilitation Act. Retrived on April 2, 2008 at http://www.section508.gov/index.cfm?FuseAction=Content&ID=14
32. Whalen, C., Liden, L., Ingersoll, B., and Liden, S. (2007). Evidence-based computer assisted instruction for autism spectrum disorders. In J. Lazar (ed.) Universal Usability: Designing Computer Interfaces for Diverse Users. Chichester, UK: John Wiley & Sons, 263--297.
33. Winders, P. (1997). Gross motor skills in children with Down syndrome: A guide for parents and professionals. Bethesda, MD: Woodbine House.
34. World Wide Web Consortium (2008) Web Content Accessiblity Guidelines. Retrieved on April 2, 2008 at http://www.w3.org/wai
35. Wu, M., Baecker, R., and Richards, B. (2007). Designing a cognitive aid for and with people who have anterograde amnesia. In J. Lazar (ed.) Universal Usability: Designing Computer Interfaces for Diverse Users. Chichester, UK: John Wiley & Sons, 317--356.

Index Terms

• Social and professional topics

  • Professional topics

    • Computing profession

      • Assistive technologies

  • User characteristics

    • People with disabilities