Hwajung Hong
ABSTRACT
Independence is key to a successful transition to adulthood for individuals with autism. Social support is a crucial factor for achieving adaptive self-help life skills. In this paper we describe the results of a formative design exercise with young adults with autism and their caregivers to uncover opportunities for social networks to promote independence and facilitate coordination. We propose the concept of SocialMirror, a device connected to an online social network that allows the young adult to seek advice from a trusted and responsive network of family, friends and professionals. Focus group discussions reveal the potential for SocialMirror to increase motivation to learn everyday life skills among young adults with autism and to foster collaboration among a distributed care network. We present design considerations to leverage a small trusted network that balances quick response with safeguards for privacy and security of young adults with autism.
Supplemental Material
- Burke, M., Kraut, R., and Williams, D. Social use of computer-mediated communication by adults on the autism spectrum. Proc. CSCW 2010, ACM, 425--434. Google Scholar
Digital Library
- Carmien, S., Dawe, M., Fischer, G., Gorman, A., Kintsch, A., and Sullivan, J. F. Socio-technical environments supporting people with cognitive disabilities using public transportation. ACM Transactions on Computer-Human Interaction, (2005), 233--262. Google ScholarDigital Library
- Carnahan, C. R., Hume, I. K., Clarke, I. L., and Borders, I. C. Using Structured Work Systems to Promote Independence and Engagement for Students With ASD. Teaching Exceptional Children 41, 4 (2009), 6--14.Google ScholarCross Ref
- Ellison, N. B., Steinfield, C., and Lampe, C. The Benefits of Facebook "Friends:" Social Capital and College Students' Use of Online Social Network Sites. Journal of Computer-Mediated Communication 12, 4 (2007), 1143--1168.Google ScholarCross Ref
- Geyer, W., Dugan, C., Brownholtz, E., Masli, M., Daly, E., and Millen, D. R. An Open, Social Microcalendar for the Enterprise: Timely. Proc. CHI 2011, ACM. 247--256. Google ScholarDigital Library
- Grimes, A., Bednar, M., and Bolter, J. EatWell: sharing nutrition-related memories in a low-income community. Proc. CSCW 2008, ACM, 87--96. Google ScholarDigital Library
- Hayes, G. R., Hirano, S., Marcu, G., Monibi, M., Nguyen, D. H., and Yeganyan, M. Interactive visual supports for children with autism. Personal and Ubiquitous Computing 14, 7 (2010). Google ScholarDigital Library
- Hong, H., Kim, G. J., Abowd, G. D., Arriaga, R. I. SocialMirror: Motivate young adults with autism to practice life skills in a social world, CSCW 2012 Videos. Google ScholarDigital Library
- Howlin, P., Goode, S., Hutton, J., and Rutter, M. Adult outcome for children with autism. Journal of child psychology and psychiatry, and allied disciplines 45, 2 (2004), 212--229.Google Scholar
- Hume, K., Loftin, R., and Lantz, J. Increasing independence in autism spectrum disorders: a review of three focused interventions. Journal of autism and developmental disorders 39, 9 (2009), 1329--1338.Google Scholar
- Jorgensen, D. L. Participant observation: a methodology for human studies. SAGE, 1989.Google Scholar
- Kollock, P. Design Principles for Online Communities. Proc. VRAIS 97. Google ScholarDigital Library
- Krauss, M. W., Seltzer, M. M., and Jacobson, H. T. Adults with autism living at home or in non-family settings: positive and negative aspects of residential status. Journal of intellectual disability research. 49, 2 (2005), 111--24.Google Scholar
- Lester, J. Brigadoon: More about Brigadoon. 2005. http://braintalk.blogs.com/brigadoon/2005/01/more_about_brig.html.Google Scholar
- Mechling, L. C. and Savidge, E. J. Using a Personal Digital Assistant to Increase Completion of Novel Tasks and Independent Transitioning by Students with Autism Spectrum Disorder. Journal of autism and developmental disorders, (2010), 687--704.Google Scholar
- Muller, E., Schuler, A., and Yates, G. B. Social challenges and supports from the perspective of individuals with Asperger syndrome and other autism spectrum disabilities. Autism 12, 2 (2008), 173--190.Google ScholarCross Ref
- A Generation of Autism, Coming of Age. NYTimes, 2010. http://www.nytimes.com/ref/health/healthguide/esn-autism-reporters.html.Google Scholar
- Ostrom, E. Governing the commons: the evolution of institutions for collective action. Cambridge University Press, 1990.Google ScholarCross Ref
- PatientsLikeMe. http://www.patientslikeme.com.Google Scholar
- Skeels, M. M., Unruh, K. T., Powell, C., and Pratt, W. Catalyzing social support for breast cancer patients. Proc. CHI 2010, ACM, 173--182. Google ScholarDigital Library
- Smith, M. A. and Kollock, P. Communities in cyberspace. Psychology Press, 1999. Google ScholarDigital Library
- Strauss, A. and Corbin, J., Basics of Qualitative Research Techniques and Procedures for Developing Grounded Theory. Sage Publications, London, 1998.Google Scholar
- Taylor, J. L. and Seltzer, M. M. Employment and Post-Secondary Educational Activities for Young Adults with Autism Spectrum Disorders During the Transition to Adulthood. Journal of autism and developmental disorders 41, 5 (2011), 566--74.Google Scholar
- Wu, M., Birnholtz, J., Richards, B., Baecker, R., and Massimi, M. Collaborating to remember: a distributed cognition account of families coping with memory impairments. Proc. CHI 2008, ACM, 825--834. Google ScholarDigital Library
Index Terms
- Designing a social network to support the independence of young adults with autism
Recommendations
Investigating the use of circles in social networks to support independence of individuals with autism
CHI '13: Proceedings of the SIGCHI Conference on Human Factors in Computing SystemsBuilding social support networks is crucial both for less-independent individuals with autism and for their primary caregivers. In this paper, we describe a four-week exploratory study of a social network service (SNS) that allows young adults with ...
Specializing social networking services for young adults with autism
CSCW Companion '14: Proceedings of the companion publication of the 17th ACM conference on Computer supported cooperative work & social computingIndependence is key to a successful transition to adulthood for all young people. However, attaining a satisfying independent life is challenge for those with autism because of qualitative differences in restricted behaviors as well as social ...
Comments