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Individual and Social Recognition: Challenges and Opportunities in Migraine Management

Published: 28 February 2015 Publication History

Abstract

This study investigates how people manage chronic migraine -- an illness characterized by unpredictable, intermittent breakouts in everyday life. Participants in our study must self-identify migraine symptoms, triggers, and effective coping mechanisms while also seeking social recognition and assistance from a social network during migraine attacks. We argue that the challenges in identifying and managing migraine as well as in communicating with clinicians and social networks arise in response to the patients' need to deal with the unpredictability and intermittency of the disease. We suggest technologies that, unlike current chronic care systems, enable patients with migraine and similar diseases to track a wide range of life events across intermittent time stamps and help make sense of subjective information. We argue that technologies should also help patients gain social recognition and assistance during breakouts. This work contributes to the growing body of knowledge in personal informatics and quantified-self research.

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    cover image ACM Conferences
    CSCW '15: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing
    February 2015
    1956 pages
    ISBN:9781450329224
    DOI:10.1145/2675133
    Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

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    Published: 28 February 2015

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    Author Tags

    1. chronic disease
    2. health
    3. migraine
    4. migraine management
    5. personal informatics
    6. self-care
    7. self-management

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    • (2024)Enhancing Epilepsy Awareness and Cooperative Care in Elementary and Middle SchoolsProceedings of the ACM on Human-Computer Interaction10.1145/36410038:CSCW1(1-25)Online publication date: 26-Apr-2024
    • (2024)"It's Sink or Swim": Exploring Patients' Challenges and Tool Needs for Self-Management of Postoperative Acute PainProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642916(1-11)Online publication date: 11-May-2024
    • (2024)Bodywork at Work: Attending to Bodily Needs in Gig, Shift, and Knowledge WorkProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642416(1-13)Online publication date: 11-May-2024
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    • (2024)MigraineTracker: Examining Patient Experiences with Goal-Directed Self-Tracking for a Chronic Health ConditionProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642075(1-19)Online publication date: 11-May-2024
    • (2023)Understanding Contexts and Challenges of Information Management for Epilepsy CareProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580949(1-15)Online publication date: 19-Apr-2023
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    • (2021)Navigating Illness, Finding Place: Enhancing the Experience of Place for People Living with Chronic IllnessProceedings of the 4th ACM SIGCAS Conference on Computing and Sustainable Societies10.1145/3460112.3471955(173-187)Online publication date: 28-Jun-2021
    • (2021)Just In TimeProceedings of the ACM on Human-Computer Interaction10.1145/34491875:CSCW1(1-24)Online publication date: 22-Apr-2021
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