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Participation, power, critique: constructing a standard for electronic patient records

Published: 01 August 2006 Publication History

Abstract

This paper examines the scope of participatory design on the basis of the case of a national standard for electronic patient records (EPR) in Denmark. The relationship between participatory methods and techniques on the one hand and critical and emancipatory aims on the other is discussed within the framework of participatory design. Some argue that participation in itself entails striving towards democracy; others argue that the tendency to focus upon tools, techniques and the arena of single projects should be supplemented by emancipatory aims such as technology assessment and a critique of dominance. These issues are discussed through the controversies surrounding the test of a prototype application based on BEHR in late 2004, a standard for EPRs (Basic Structure for Electronic Health Records). I argue that participation is valuable, but that the scope of participatory design should also include critical conceptualizations of participation, power, methodology and knowledge. Finally, standards can be crucial cases to examine for participatory design, since they affect the work of many people and call for a focus on arenas beyond the single design project.

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  • (2022)On power and participationInternational Journal of Child-Computer Interaction10.1016/j.ijcci.2020.10024127:COnline publication date: 6-May-2022
  • (2022)Representative Participation in a Large-Scale Health IT ProjectComputer Supported Cooperative Work (CSCW)10.1007/s10606-022-09457-032:3(507-544)Online publication date: 28-Dec-2022
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cover image ACM Other conferences
PDC '06: Proceedings of the ninth conference on Participatory design: Expanding boundaries in design - Volume 1
August 2006
149 pages
ISBN:159593460X
DOI:10.1145/1147261
Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

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  • CPSR: Computer Professionals for Social Responsibility

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Association for Computing Machinery

New York, NY, United States

Publication History

Published: 01 August 2006

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Author Tags

  1. electronic patient records
  2. knowledge
  3. participatory design
  4. power
  5. standards

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PDC'06
Sponsor:
  • CPSR
PDC'06: Expanding Boundaries in Design
August 1 - 5, 2006
Trento, Italy

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Overall Acceptance Rate 49 of 289 submissions, 17%

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Cited By

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  • (2022)Understanding Power Differentials and Cultural Differences in Co-design with Marginalized PopulationsProceedings of the 5th ACM SIGCAS/SIGCHI Conference on Computing and Sustainable Societies10.1145/3530190.3534819(165-179)Online publication date: 29-Jun-2022
  • (2022)On power and participationInternational Journal of Child-Computer Interaction10.1016/j.ijcci.2020.10024127:COnline publication date: 6-May-2022
  • (2022)Representative Participation in a Large-Scale Health IT ProjectComputer Supported Cooperative Work (CSCW)10.1007/s10606-022-09457-032:3(507-544)Online publication date: 28-Dec-2022
  • (2021)Participatory DesignSynthesis Lectures on Human-Centered Informatics10.2200/S01136ED1V01Y202110HCI05214:5Online publication date: 9-Nov-2021
  • (2021)Designing Tools for Participation: A Norm-Creative Method for Co-constructing Personas with Children with Disabilities (Preprint)Journal of Participatory Medicine10.2196/29743Online publication date: 6-May-2021
  • (2018)Barriers to scaling up participatory design interventions in health ITProceedings of the 15th Participatory Design Conference: Short Papers, Situated Actions, Workshops and Tutorial - Volume 210.1145/3210604.3210612(1-5)Online publication date: 20-Aug-2018
  • (2018)On scale, dialectics, and affectProceedings of the 15th Participatory Design Conference: Full Papers - Volume 110.1145/3210586.3210591(1-13)Online publication date: 20-Aug-2018
  • (2015)The diversity of participatory design research practice at PDC 2002-2012International Journal of Human-Computer Studies10.1016/j.ijhcs.2014.09.00374:C(81-92)Online publication date: 1-Feb-2015
  • (2011)User-Centred Systems Design as Organizational ChangeSociological and Philosophical Aspects of Human Interaction with Technology10.4018/978-1-60960-575-9.ch005(80-120)Online publication date: 2011
  • (2010)User gains and PD aimsProceedings of the 11th Biennial Participatory Design Conference10.1145/1900441.1900461(141-150)Online publication date: 29-Nov-2010
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