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XTag: designing an experience capturing and sharing tool for persons with aphasia

Published: 16 October 2010 Publication History

Abstract

In this paper we describe the design and exploratory field evaluation of an experience tagging and sharing application for people with expressive aphasia. We conducted a probe study with representatives from this target user group to gain a deeper understanding of the potential use of technology to capture and share everyday experiences. We used the obtained insights in the design of a new experience tagging tool (XTag). Our field study with the resulting prototype suggests that multimedia (picture, audio and GPS) indeed offer great potential for assisting aphasics while retelling their past experiences. Specifically, the tagging application improved support over a digital camera as it could be more easily operated single-handedly, which was much appreciated by aphasics. We also share some methodological lessons that we learned from our study.

References

[1]
Allen, M., Leung, R., et al. (2008). Involving domain experts in assistive technology research. Universal Access in the Information Society 7(3): 145--154.
[2]
Allen, M., McGrenere, J., and Purves, B. (2007). The design and field evaluation of PhotoTalk: a digital image communication application for people. In Proceedings of Assets '07, 187--194.
[3]
Ames, M. and M. Naaman. (2007). Why we tag: motivations for annotation in mobile and online media. In Proceedings of CHI '07, ACM, 971--980.
[4]
Ash, S., et al. (2006). Trying to tell a tale: discourse impairments in progressive aphasia and frontotemporal dementia. Neurology, 66(9):1405--1413.
[5]
Balabanović, M., Chu, L. L., and Wolff, G. J. (2000). Storytelling with digital photographs. In Proceedings of CHI '00, ACM, 564--571.
[6]
Berry, E., N. Kapur, et al. (2007). The use of a wearable camera, SenseCam, as a pictorial diary to improve autobiographical memory in a patient with limbic encephalitis: A preliminary report. Neuropsychological Rehabilitation 17(4): 582--601.
[7]
Boyd-Graber, J. L., Nikolova, S. S., Moffatt, K. A., Kin, K. C., Lee, J. Y., Mackey, L. W., Tremaine, M. M., and Klawe, M. M. (2006). Participatory design with proxies: developing a desktop-PDA system to support people with aphasia. In Proceedings of CHI '06. ACM, 151--160.
[8]
Byrne, D., Jones, G. J. F. (2009). Exploring Narrative Presentation for Large Multimodal Lifelog Collections through Card Sorting. In Proc. ICIDS 2009, pp. 92--97
[9]
Cruice, M., R. Hill, et al. (2009). Conceptualising quality of life for older people with aphasia. Aphasiology, iFirst (1): 1--21.
[10]
Daemen, E., P. Dadlani, et al. (2007). Designing a free style, indirect, and interactive storytelling application for people with aphasia. LECTURE NOTES IN COMPUTER SCIENCE 4662: 221--234.
[11]
Danielsson, H., & Svensk, A. (2001). Digital pictures as cognitive assistance. In proceedings of AAATE '01, Assistive Technology-added Value to the Quality of Life: 148--152.
[12]
Davidson, B., T. Howe, et al. (2008). Social Participation for Older People with Aphasia: The Impact of Communication Disability on Friendships. Topics in Stroke Rehabilitation 15(4): 325--340.
[13]
Greenwald, A., Nosek, B., & Banaji, M. (2003). Understanding and using the Implicit Association Test: I. An improved scoring algorithm. Journal of Personality and Social Psychology, 85(2), 197--216.
[14]
Gemmell, J., Williams, L., Wood, K., Lueder, R., and Bell, G. 2004. Passive capture and ensuing issues for a personal lifetime store. In CARPE'04, pp. 48--55.
[15]
Hawkey, K., Inkpen, K. M., Rockwood, K., McAllister, M., and Slonim, J. (2005). Requirements gathering with alzheimer's patients and caregivers. In Proceedings of Assets '05, pp. 142--149.
[16]
Hillis, A. (2007). Aphasia: progress in the last quarter of a century. Neurology 69(2): 200--213.
[17]
Hine, N., Arnott, J. (2002). Assistive social interaction for non-speaking people living in the community. In proc of Assets 2002, 162--169
[18]
Hutchinson, H., Mackay, W., Westerlund, B., Bederson, B. B., Druin, A., Plaisant, C., Beaudouin-Lafon, M., Conversy, S., Evans, H., Hansen, H., Roussel, N., and Eiderbäck, B. (2003). Technology probes: inspiring design for and with families. In Proceedings of CHI '03, 17--24.
[19]
Huber, W., Poeck, K., & Willmes, K. (1984). The Aachen Aphasia Test. Advances in neurology, 42, 291.
[20]
Jönsson, B., Svensk, A. (1995). Isaac, a Personal Digital Assistant for the Differently Abled, Proceedings of the 2nd TIDE Congress, 356--361.
[21]
Lasker, J. & Bedrosian, J. (2001). Promoting acceptance of augmentative and alternative communication by adults with acquired communication disorders. Augmentative and alternative communication 17(3): 141--153.
[22]
Lee, M. L. and Dey, A. K. (2008). Life logging memory appliance for people with episodic memory impairment. In Proceedings of the 10th international Conference on Ubiquitous Computing, UbiComp '08, vol. 344. 44--53.
[23]
Levin, T., Scott, B., et al. (2007). Aphasia Talks: Photography as a Means of Communication, Self-Expression, and Empowerment in Persons with Aphasia. Topics in Stroke Rehabilitation 14(1): 72--84.
[24]
Light, J. (1988). Interaction involving individuals using augmentative and alternative communication systems: State of the art and future directions. Augmentative and Alternative Communication 4(2): 66--82.
[25]
Lorch, M. P., Borod, J. C., et al. (1988). The role of emotion in the linguistic and pragmatic aspects of aphasic performance. Journal of Neurolinguistics 11, 1--2, 103--118
[26]
Mar, R. (2004). The neuropsychology of narrative: story comprehension, story production and their interrelation. Neuropsychologia. 42(10): p. 1414--1434.
[27]
Mckelvey, M., A. Dietz, et al. (2007). Performance of a person with chronic aphasia using personal and contextual pictures in a visual scene display prototype. Journal of Medical Speech Language Pathology 15(3): 305--317.
[28]
Moffatt, K., J. McGrenere, et al. (2004). The participatory design of a sound and image enhanced daily planner for people with aphasia, In proceedings of CHI '04, pp. 407--414.
[29]
MindExpress. www.jabbla.com
[30]
Shen, C., Lesh, N., Vernier, F., Frolines, C., Frost J. (2002) Sharing and Building Digital Group Histories. In Proc. of CSCW'02, 324--333
[31]
SolidWorks. http://www.solidworks.com/
[32]
Sunglass camera: http://www.thinkgeek.com/gadgets/electronic/a0f3/
[33]
Thorburn, L., Newhoff, M., and Rubin, S. (1995). Ability of subjects with aphasia to visually analyze written language, pantomime, and iconographic symbols. American Journal of Speech-Language Pathology 4(4) pp. 174--179.
[34]
Van de Sandt-Koenderman, W., F. & van Harskamp, et al. (2008). MAAS (Multi-axial Aphasia System): realistic goal setting in aphasia rehabilitation. International Journal of Rehabilitation Research 31(4): 314--320.
[35]
Van de Sandt-Koenderman, M. (2004). High-tech AAC and aphasia. Widening horizons. Psychology Press 18(3): 245--263.
[36]
TouchSpeak. www.touchspeak.co.uk

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  • (2024)Looking Past Screens: Exploring Mixed Reality and Discreet AAC DevicesProceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3663548.3675655(1-22)Online publication date: 27-Oct-2024
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  • (2021)Designing AACs for People with Aphasia Dining in RestaurantsProceedings of the 2021 CHI Conference on Human Factors in Computing Systems10.1145/3411764.3445280(1-14)Online publication date: 6-May-2021
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cover image ACM Other conferences
NordiCHI '10: Proceedings of the 6th Nordic Conference on Human-Computer Interaction: Extending Boundaries
October 2010
889 pages
ISBN:9781605589343
DOI:10.1145/1868914
Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

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  • Reykjavik University
  • University of Iceland

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New York, NY, United States

Publication History

Published: 16 October 2010

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Author Tags

  1. aphasia
  2. digital photo
  3. inclusive design
  4. photo tagging
  5. sharing experiences
  6. storytelling
  7. technology probe

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  • (2024)Looking Past Screens: Exploring Mixed Reality and Discreet AAC DevicesProceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3663548.3675655(1-22)Online publication date: 27-Oct-2024
  • (2022)State of the Art in AAC: A Systematic Review and TaxonomyProceedings of the 24th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3517428.3544810(1-22)Online publication date: 23-Oct-2022
  • (2021)Designing AACs for People with Aphasia Dining in RestaurantsProceedings of the 2021 CHI Conference on Human Factors in Computing Systems10.1145/3411764.3445280(1-14)Online publication date: 6-May-2021
  • (2020)A Design Engineering Approach for Quantitatively Exploring Context-Aware Sentence Retrieval for Nonspeaking Individuals with Motor DisabilitiesProceedings of the 2020 CHI Conference on Human Factors in Computing Systems10.1145/3313831.3376525(1-11)Online publication date: 21-Apr-2020
  • (2018)Sharing MemoriesInternational Journal of Sociotechnology and Knowledge Development10.4018/IJSKD.201801010210:1(21-36)Online publication date: 1-Jan-2018
  • (2018)Effects of Viewing Multiple Viewpoint Videos on Metacognition of Collaborative ExperiencesProceedings of the 2018 CHI Conference on Human Factors in Computing Systems10.1145/3173574.3174222(1-13)Online publication date: 21-Apr-2018
  • (2017)Augmentative and alternative communication devices for aphasiaUniversal Access in the Information Society10.5555/3057333.305739916:1(115-128)Online publication date: 1-Mar-2017
  • (2016)The Cost of Turning HeadsProceedings of the 18th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/2982142.2982165(111-120)Online publication date: 23-Oct-2016
  • (2015)Designing Conversation Cues on a Head-Worn Display to Support Persons with AphasiaProceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems10.1145/2702123.2702484(231-240)Online publication date: 18-Apr-2015
  • (2015)Augmentative and alternative communication devices for aphasia: the emerging role of “smart” mobile devicesUniversal Access in the Information Society10.1007/s10209-015-0428-x16:1(115-128)Online publication date: 28-Sep-2015
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