ABSTRACT
While patients' increasing willingness to collect personal health data portends improvements in the individualization of health care, helping health care providers to effectively act upon these personal data collections poses its own challenges. In this paper, we discuss the challenges we have noticed as we work towards the creation of tools to help chronic patients present their data to their clinicians.
- S. K. Card and J. Mackinlay. 1997. The structure of the information visualization design space. In Proc. of InfoVis'97. IEEE, 92--99. Google ScholarDigital Library
- E. K. Choe, N. B. Lee, B. Lee, W. Pratt, and J. A. Kientz. 2014. Understanding Quantified-selfers' Practices in Collecting and Exploring Personal Data. In Proc. of CHI '14. ACM, 1143--1152. Google ScholarDigital Library
- C. Chung et al. 2016. Boundary Negotiating Artifacts in Personal Informatics: Patient-Provider Collaboration with Patient-Generated Data. In Proc. of CSCW '16. ACM, 770--786. Google ScholarDigital Library
- A. Jang, D. L. MacLean, and J. Heer. 2014. BodyDiagrams: Improving Communication of Pain Symptoms Through Drawing. In Proc. of CHI '14. ACM, 1153--1162. Google ScholarDigital Library
- H. MacLeod, A. Tang, and S. Carpendale. 2013. Personal Informatics in Chronic Illness Management. In Proc. of GI '13. 149--156. Google ScholarDigital Library
- T. Ni, A. K. Karlson, and D. Wigdor. 2011. AnatOnMe: Facilitating Doctor-patient Communication Using a Projection-based Handheld Device. In Proc. of CHI '11. ACM, 3333--3342. Google ScholarDigital Library
- L. M. L. Ong, J. C. J. M. de Haes, A. M. Hoos, and F. B. Lammes. 1995. Doctor-patient communication: A review of the literature. Social Science & Medicine 40, 7 (1995), 903--918.Google ScholarCross Ref
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